Sydoney’s Story

Read Sydoney’s Endo Story below…
I have always had painful periods but I honestly thought that was normal. As an adult these painful episodes began to affect me even outside of the time I was having my menses…so I would be in pain all the time.

It wasn’t until I had surgery to remove ovarian cysts that I was diagnosed with endo. At that time, the mid to late 1990s, there was hardly any information available about the disease, the doctors were clueless and so I had to start doing my own research. It got to the point that I had more information than the doctors. By this time my pain was almost unbearable, I could plan to be out from work at least two days out of every month and had to be be on painkillers at all times.

I was lucky enough after two years of trying to give birth to my son, who is now fourteen and the joy of my life, I call him my “miracle baby”. I never conceived again although it was my heart’s desire.

After several more years of suffering and two operations I finally met a doctor who understood my condition and was able to help me through surgery and recovery. I know that the disease cannot be ‘cured’ but I am now at the point where it is under control. For the most part I am pain free and doing well.

I try to talk to other women as much as possible about the disease and encourage them to do as much research as possible to educate themselves. I know that knowledge is power and that if you know what is happening to your body it is so much easier to make good decisions about your care.

Each story is unique and it takes a lot of courage to share. The comments are open below so we can all learn through each others experiences. Please be kind in your responses below.

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